Organ Transplant Resources
Organ Transplant Publications
Organ Transplant Glossary
United Network for Organ Sharing
http://www.unos.org/
The UNOS Organ Center assists in placing donated organs for transplantation, in gathering donor information and running the donor/recipient computer matching process, with transportation of organs and tissues for the purposes of transplantation, and acts as a resource to the transplant community regarding organ-sharing policies.
Able Data
www.abledata.com
ABLEDATA is a federally funded project whose primary mission is to provide information on assistive technology and rehabilitation equipment available from domestic and international sources to consumers, organizations, professionals, and caregivers within the United States. The ABLEDATA database contains information on more than 30,000 assistive technology products (over 20,000 of which are currently available); detailed descriptions of each product including price and company information; and information on non-commercial prototypes, customized and one-of-a-kind products, and do-it-yourself designs. Note: ABLEDATA does not produce, distribute or sell any of the products listed on the database, but they will provide you with information on how to contact manufacturers or distributors of these products. They also do not produce any type of catalog.
American Association of Kidney Patients
http://www.aakp.org/
The American Association of Kidney Patients provides education and support to people living with kidney disease. The web site contains a wealth of educational material on living with kidney disease, dialysis, or a kidney transplant. It also offers a list of the Association's nationwide chapters, access to its newsletters, and information about its upcoming annual convention.
American Kidney Fund
http://www.akfinc.org/
The American Kidney Fund helps people deal with the financial burdens associated with chronic kidney disease. The web site contains information about the Fund, and its financial aid and support programs.
American Liver Foundation
http://www.liverfoundation.org/
The American Liver Foundation is a support and advocacy group for people living with hepatitis and other liver diseases. The web site contains information about the Foundation, its various chapters, and its advocacy work. The site also contains a section on liver disease, as well as personal accounts on living with liver disease.
American Physical Therapy Association
www.apta.org
offers list of publications of interest to parents and educators of handicapped children
Breonics
http://www.breonics.com/
Breonics, Inc. is a biomedical research and development company on the cutting edge of innovative medical products for the clinical organ transplant and tissue replacement markets.
Children's Non-Profit Organization for Critically Ill Children Jesica's Hope Chest, Inc.
http://www.4jhc.org/
Jesica's Hope Chest, Inc. (A Foundation for Critically Ill Children) is dedicated to helping critically ill children, and its intention is to assist families with medical costs beyond what is paid by medical assistance program and insurance. Jesica's Hope Chest, Inc. would also help provide transportation to and from medical facilities, to help fund housing costs when medical treatment is at a hospital outside of the area, and to help families purchase specialized equipment and formulas.
COTA
http://www.cota.org/
Children's Organ Transplant Association is a nonprofit organization founded in 1986 to ensure that no person is denied a life-saving organ transplant because of a lack of funds or a lack of an available organ.
Coalition On Donation
http://www.shareyourlife.org/
The Coalition on Donation promotes organ and tissue donation throughout the country. Their web site contains a list of the coalition's affiliates, a section on the facts and fictions of organ donations, and a gift shop.
Disability Resources Monthly
www.disabilityresources.org
Web resource focused on disability issues. Includes publications, software, videos and databases.
The Gift of Life Foundation
http://www.giftoflifefoundation.org/
The Gift of Life Foundation aims to increase public awareness about organ and tissue donation. The Foundation's web site contains transplant recipients' stories and poems, a list of frequently asked questions and access to a printable donor card. The site also features a section on religious attitudes towards organ donation and transplantation.
The Gift of a Lifetime
http://www.organtransplants.org/
The Gift of a Lifetime, is a Coalition-sponsored web documentary about organ and tissue transplantation. The site also includes in-depth information about all aspects of organ and tissue transplantation, compelling and emotional features about transplant recipients and donor families, resources for educators and students and tools to help web users become donors.
Insulin-Free World Foundation
http://www.insulinfree.org/
The Insulin-Free World Foundation is an online resource dealing with all aspects of diabetes. The web site contains extensive information on diabetes, pancreas transplants, and islet cell replacement. It also contains a section on the social, political and economic issues involved in living with diabetes.
International Society for Heart and Lung Transplantation
http://www.ishlt.org/
ISHLT Quarterly Data Report - North America
http://www.ishlt.org/registries/quarterlyDataReportResults.asp
?organ=HL&rptType=don_p_surv&continent=4
Created in 1981 at a small gathering of about 15 cardiologists and cardiac surgeons, the International Society for Heart and Lung Transplantation now has over 2200 members from over 45 countries, representing over 10 different disciplines involved in the management and treatment of end-state heart and lung disease.
Living Bank
http://www.livingbank.org/
Non profit and funded through private donation, the Living Bank exists to educate the community about the urgent need for donors so no one will die or suffer for lack of a donation.
National Foundation for Transplants
http://www.transplants.org/
The National Foundation for Transplant provides financial support and advocacy for transplant recipients and their families. Their web site contains information about the Foundation and its fundraising campaigns, and a list of all the people in need of financial assistance for their transplant.
National Kidney Foundation
http://www.kidney.org/
The National Kidney foundation provides advocacy, support, and education to people with kidney disease. Their web site contains a section for organ and tissue donors and recipients, and a section on the US Transplant Games.
National Transplant Assistance Fund
http://www.transplantfund.org/
The National Transplant Assistance Fund provides people in need of an organ transplant with financial assistance and information on establishing fundraising campaigns to pay for their transplants. The web site also features educational information on organ and tissue donation.
Ochsner Clinic Foundation Multi-Organ Transplant Center
http://www.ochsner.org/services/multi_organ_transplant/
Since its inception in 1984, the Ochsner Multi-Organ Transplant Center has performed more than 2,000 life-saving heart, lung, liver, kidney and pancreas transplants. Ochsner Clinic Foundation is the only Center of Excellence in the Gulf South region for liver, kidney and heart transplants, designated by the United Resource Networks.
Organ Donation
http://www.organdonor.gov/
Organ Donation is a governmental web site providing information and resources on organ donation and transplantation issues. The site features, among others, a list of Frequently Asked Questions (a FAQ), and a section on the myths surrounding organ donation and allocation.
Organ Transplant Services
http://www.state.ma.us/dph/dhcq/transpl.htm
Organ Transplant Services (OTS) develops health policies regarding organ transplant issues, serves as a liaison to donation agencies, and administers the Organ Transplant Fund.
Pacer
www.pacer.org
Provides assistance to individuals and families. Includes workshops and materials for parents, professionals and leadership in securing free and appropriate education for all children.
Transplant Awareness Inc.
http://www.transplantawareness.org/default.htm
TAI is a nonprofit corporation run and operated by volunteers who are all organ transplant recipients. Their objective is to market products that will promote organ donation by increasing awareness among the general population. It is TAI's hope that their efforts will result in more organs being donated and more lives being saved.
UCLA Transplant Services
http://www.healthcare.ucla.edu/
UCLA Medical Center is a national leader in the art and science of organ transplantation and is one of only a few national transplantation centers that offer a full spectrum of Transplantation Services for adult and pediatric patients. As part of the largest multi-organ transplant center in the United States, UCLA surgeons perform hundreds of single and multiple organ transplants each year.
UMMC Division of Transplantation University of Maryland Medicine
http://www.umm.edu/transplant/
The Organ Transplant Services at the UMMC Division of Transplantation are a comprehensive center with transplantation capabilities in kidney, pancreas, simultaneous kidney-pancreas, liver, heart and lung, and perform more kidney transplants than any other transplant center.
